We switch each year – and this year was my year to have them from when school got out until noon on Christmas and then again from the night of the 30th until they go back to school.
My kids left for Christmas with their dad yesterday at noon. It hurts, looks weird and is just one more thing that’s going on with my body…I can’t seem to stay stable for very long…always something new happening to have to process and deal with. Subcutaneous nodules are fairly common (sometimes called rheumatoid nodules) in rheumatoid arthritis ( which I had been diagnosed with for 2 years but no longer am) but I can’t find much info on them for patient’s with primary Sjogren’s…so who knows what THIS means for my musical diagnoses. It’s the wrist that hurts the most and has loss of motion and other issues due to my autoimmune issues. I have a nodule that has popped up on my left wrist (after my last visit to the rheumatologist last Friday so I couldn’t talk to him about it – it will have to wait until Feb to discuss it). So along with other blood work they sent out for that day was bloodwork looking for sclerodema…just what I need, a possible overlap of another disease. I’m NOT a morning person and this is going to make me quite cranky!Īt my last rheumatologist appointment they noticed that I have broken blood vessels around the cuticles of my nails – they can only see it with the lit magnifier and no one has bothered to look there with it before. My next appointment with the KU Med rheumatologist isn’t until Feb 20th because he wanted to give me a chance to have an appt with a neurologist and for him to receive the info from that appt.Īnd to make matter worse, my MRI is at 7am and it’s over an hour away. And of course after the MRI I won’t hear anything for a while until doctors pass along the info to each other. But it’s actually one of the ways that my disease can manifest and it would tie in with my neurological issues and even the brain fog that I have going on. Just the thought of lesions on any part of my brain is utterly terrifying. So now I have an MRI scheduled to make sure that I don’t have lesions on the white matter of my brain. As I’m getting better at describing exactly what’s going on with my loss of fine motor control and neurological issues they think it might be central-nervous system related now (especially after the EMG/NCS showed normal results). I have to go have an MRI done on my head tomorrow (the 27th). I have a lot on my mind lately, and this is a “dump it all out” type of post.
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